To give context to our letter writing campaign …
Months ago we suggested to a regulator that they provide information on their website advising where women can go for help and what they can do when they have migrated silicone.
We knew all too well that there is NOTHING and NOWHERE. Sometimes surgeons will remove a silicone filled lymph node(s), though most surgeons are reluctant to do so. Or surgically excise silicone embedded into a muscle, as in my case where my surgeon removed my pectoralis minor muscle because it was embedded with silicone. She also removed silicone granulomas, a large silicone filled mass, some intercostal muscles, and more. But she couldn’t remove the silicone embedded against my lungs, and now possibly in my lungs. Or, multiple silicone filled lymph nodes scattered throughout my body. Or a lot of other silicone that had migrated deeply within me to places a surgeon’s scalpel cannot reach, or at least safely excise. Once silicone is in the lymph system and has crossed into the blood, it goes viral. I am merely one of millions.
Its my personal belief, btw, that while countless women have been diagnosed with migrated silicone, most women will have micro-droplets of silicone migrated through them, even though it has not yet been diagnosed (because no one is looking for it).
Circling back to our suggestion that the regulator provide information on remedial recourse for women with migrated silicone on their website, our intention was that they be faced with the fact that there is nothing.
Reading our words to them angered me, and became the catalyst for the letter writing campaign.
How do regulatory bodies get away with continuing to license devices causing women permanent harm while allowing manufacturers to escape accountability.
It’s been SIXTY YEARS.
Whatever the reason this has gone on so long .. whether ineptitude .. understaffing .. financial kickbacks .. corruption .. negligence .. indifference .. THIS HAS TO STOP! WE HAVE TO STAND UP AND SAY ‘ENOUGH’.
PLEASE JOIN US IN SAYING ‘ENOUGH’!
Please write your country’s regulatory body to demand manufacturers provide long term safety data, using women already harmed in studies, not through harming new women and waiting 20 years to find out what happens to them. The starting point isn’t now, it was sixty years ago! If you feel so compelled, demand a moratorium on breast implants until the safety of migrated silicone is answered.